Download Compelled Compassion: Government Intervention in the by Robert F. Weir (auth.), Arthur L. Caplan, Robert H. Blank, PDF

By Robert F. Weir (auth.), Arthur L. Caplan, Robert H. Blank, Janna C. Merrick (eds.)

In April 1982, an little one boy was once born in Bloomington, Indiana, with Down syndrome and a faulty, yet surgically correctable, esophagus. His mom and dad refused to consent to surgical procedure or intravenous feeding. The clinic unsuccessfully sought a courtroom order to strength therapy, and appeals to better courts additionally failed. the kid, pointed out as child Doe by way of the scoop media, for this reason died. The occasions in Bloomington turned the catalyst for motion via the Reagan management, the courts, and Congress that culminated in a federal coverage that makes failure to regard newborns with disabilities a sort of kid forget. This e-book facilities at the public coverage facets of withholding therapy from severely in poor health newborns who're disabled. particularly, it offers with why the coverage used to be enacted and what impression it has had on well-being care staff, households, and babies. a number of the participants to this booklet spearheaded the early debate on withholding therapy. Anthony Shaw's ny occasions journal article in 1972 used to be the 1st to deal with those concerns within the renowned press. the next 12 months, he released a similar article within the New England magazine of drugs. additionally showing during this comparable factor of NEJM, was once the pathbreaking learn, coauthored via A. G. M. Campbell, on withholding therapy within the unique care nursery at Yale-New Haven sanatorium. every one of those articles promoted a lot public discussion.

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Additional resources for Compelled Compassion: Government Intervention in the Treatment of Critically Ill Newborns

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If no other institutional home can be arranged (usually because of the cost and technology involved), and if foster parents are not a realistic option, such children may reside for several years in a specialized chronic care unit in the hospital in which they were born. When that happens, the children become living symbols of a "second generation" type of Life-and-Death Decisions 29 problem brought about by the successes of neonatal intensive care: They are survivors of the NICU, but remain captives of medical technology in an institution that nobody would choose to call home.

And Fletcher, A B. (1987) Withholding of nutrition and fluids in the hopelessly ill patient, in Clinics in Perinatology, vol. 14 (Silber, T. ), W. B. Saunders, Philadelphia, pp. 367-377. Paris, J. , Crone, R K and Reardon, F. (1990) Physicians' refusal of requested treatment: The case of Baby L. N. Engl. J. Med. 322, 1012-1015. Perkins, R L. (1974) Abortion Pro and Con (Schenkman, Cambridge, MA), p. 229. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research (1983) Deciding to Forego Life-Sustaining Treatment (US Government Printing Office, Washington, DC), p.

In 1973, Raymond S. Duff and A. G. M. Campbell published their now-famous study of the special care nursery at the Yale-New Haven Hospital in the New England Journal ofMedicine (Duff and Campbell, 1973). During a 30-month period beginning in January 1970, 43 deaths (14% of total deaths) in the nursery were related to withholding treatment. Duff and Campbell discussed extensively the complexity of decision making in the special care Conflict, Compromise, and Symbolism 41 nursery, and the moral dilemmas facing staff and parents.

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